Privacy policy

The website (the “website”) is owned and operated by Brain Research Trust ( “us” or “we”), charity registered in England and Wales with charity number 1137560, and a company registered in England and Wales with company number 7345516 and a whose registered office is Dutch House, 307-308 High Holborn, London WC1V 7LL.

We take your right to privacy very seriously and respect any personal information you share with us and endeavour to keep it safe, whatever your relationship is with us. This privacy policy is intended to give you an understanding of how and why we use the information you give us.

By using our website or providing us with any personal information, including sensitive information (such as information about your health) you agree to your personal information being used and stored in the manner set out in this policy.

We may update this policy from time to time without notice to you, so please check it regularly.

How we collect information about you
We may collect and process the following data about you:

Information you give us
We may collect information from you in the following ways:
(a) our use of cookies (please see the cookies section below)
(b) you make a donation to Brain Research Trust
(c) you volunteer for Brain Research Trust
(d) you take part in a challenge event or otherwise fundraise on our behalf
(e) you apply for funding from us or
(f) you contact us with enquiries, correspond with us (including corresponding with us on behalf of a business) or become involved with us in another way (including via social media such as Twitter or Facebook).

When telling us about your story, you may provide us with sensitive personal information, for example information about your health. Except where permitted by law, we will never collect sensitive personal data about you without your consent.

If you interact with us in one of the ways listed above, we may collect and process personal information about you such as:
(a) your name, address, email address and other contact information (including details of your social media accounts/profiles)
(b) information you enter onto our website
(c) records of your correspondence with us, if you have contacted us
(d) information about your employment (for example if you are a workplace giver)
(e) details of your contact with us, including its frequency
(f) financial information
(g) details of your visit to the site

Information we received from other sources
Your information may be shared with us by third party organisations, for example fundraising sites, like Virgin Money Giving and Just Giving. They will do so based on their own policies on data protection and privacy. It’s a good idea to check their privacy policy when you provide your information to understand fully how they will process your data.

On occasion, we may also collect information (such as your telephone number and address) from the public domain, either directly or from third parties.

How we use your information
We will process your personal information in accordance with our obligations under applicable data protection laws and regulations, for the following reasons:
(a) to provide you with the services or information you have asked for
(b) to administer your purchase or donation or support your fundraising, including processing Gift Aid
(c) to comply with applicable laws and regulations, and requests from statutory agencies
(d) for our internal administrative purposes, including to administer any funding applications received
(e) to provide you with information about us and our fundraising campaigns, our services, our member benefits and any other information, products or services that we provide or provide access to
(f) to notify you about changes to our service and/or member benefits; and/or
(g) to ensure that content from our site is presented in the most effective manner for you and for your computer.

We may also analyse your personal information to create a profile of your interests and preferences so that we can contact you with information relevant to you. We may make use of additional information about you, including geo-demographic information and measures of affluence, when it is available from external sources to help us do this effectively. This helps us understand the background of the people who support us and helps us to make appropriate requests for gifts to supporters who may be willing and able to give more than they already do and/or leave us a gift in their will. We may use third party suppliers to undertake these activities on our behalf and share your data with them to the extent required.

Whilst generally we will seek consent at the point of collecting your data, in some cases we may process data without consent when we are legally allowed to do so and where it is in our legitimate interests and provided we respect your rights.

You can withdraw your consent at any time. If, at any time you do not wish to receive further information about us and our services (including fundraising materials), or you wish to change your contact details or preferences, contact us using the contact details below.

If you request to receive no further contact from us, we will keep some basic information in order to avoid sending you unwanted materials in the future, and to ensure that we do not accidentally store details for the same person multiple times.

Where we store your personal data
The data that we collect from you may be transferred to, and stored at, a destination outside the European Economic Area ("EEA"). It may also be processed by persons operating outside the EEA. If we do send your personal data outside the EEA we will take reasonable steps to ensure that the recipient implements appropriate measures to protect your information. By submitting your details you agree to this transfer.

All information you provide to us is stored on our secure servers. Any payment transactions will be encrypted using SSL technology. Where we have given you (or where you have chosen) a password which enables you to access certain parts of our site, you are responsible for keeping this password confidential. We ask you not to share a password with anyone.

Unfortunately, the transmission of information via the internet is not completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your data transmitted to our site; any transmission is at your own risk. Once we have received your information, we will use strict procedures and security features to try to prevent unauthorised access.

Who has access to your information?
We may allow our staff, consultants or other external providers acting on our behalf to access and use your information for the purposes for which you have provided it to us (such as delivering mailings, analysing data and processing credit card payments). We will only provide those companies with the information they need to deliver the relevant service, and we make sure that your data is treated with the same level of care as if we were handling it directly.
We may disclose your personal information to third parties if we are under a duty to disclose or share your personal data in order to comply with any legal obligation, or in order to enforce or apply any agreements, or to protect the rights, property or safety of Brain Research Trust, or others.

How to access and update your personal information
We want to make sure that your personal information is accurate and up to date. You may ask us to correct or remove information you think is inaccurate by contacting us using the contact details below.

Your rights
You have a right to access the personal information we hold about you and in certain circumstances to be provided with a copy of that information. You can request this by email to or by writing to us at:
Dutch House
307-308 High Holborn
London WC1V 7LL

If you are unhappy with the way in which your personal data has been handled you are entitled to make a complaint to the Information Commissioner’s Office.

Our website uses cookies to distinguish you from other users. This helps us to provide you with a good experience when you browse our website and also allows us to improve the site. For further information please see our Cookie Policy here.

Changes to this policy
We may make changes to this privacy policy from time to time, so we encourage you to check it on occasion. By continuing to use our website you will be deemed to have accepted those changes.